You and your family are very special to us Jenni .
We all understand you and want to help you.
Hope the hug helps.
Love, Doreen xx

Dearest Jenni

Sending lots and lots of love your way. Every one of you is special to us and we are ALWYS here for you.

Love you loads

Jeanxxxxx

Jenni,
Really hope you are feeling less sad today and I was so sorry to hear what happened when you went out with friends, you are always so positive and helpful to others and me through the forums . I know what you mean though, friends ask about how things are but sometimes I feel they don't really want an honest answer they would rather we say its all okay, even when talking it through with someone outside the situation would sometimes help to sort things in out my mind.
With love and sunny thoughts
Sheila

O Jenni this sounds really hard and sad, Ooo come here & have a big hug from me too xx
I dont really know what else to say but I felt a little sad earlier today too so perhaps I'll just tell u about my morning and how we tried to make bit brighter for some....

My Uncle still remains in hospital - today needed to go to city hospital for a CT scan - we went together via St John Ambulance Transport - they were great!
Dropped off for appointment. Nursing staff started to speak to me instead of him but I said "No, its not me having the appointment - please speak to my Uncle he is very deaf but not at all daft!" ....I think i may just have got outta bed in one of "those" moods! ;)
Uncle L had his scan then we had quite a while to wait for transport back to cottage hospital. The waiting room was very clinical looking, quiet at first - then a steady stream of the next "customers" started to trickle thru'
It was the general waiting area for all scans i think - chest x-ray, body scans, CT scans etc. Most people needed to put on a gown then sit with their belongings and wait for their appointment. We were lucky - St Johns staff had already told us where to go, what to do......
As the morning passed it was obvious that this info was vital but was not being given to people...... people who were very likely feeling very vulnerable and not too keen on undressing then sitting in hospital gown with people they didnt know as well as everyone being there for a reason and this likely to cause concerns also.....
It made me feel cross...and a bit sad too..The morning developed somewhat like this - someone would walk into the area, sometimes accompanied but often alone - almost always looking very nervous and awkward and not having a clue exactly what to do, where to go....
Anyway, about three "customers" in Uncle L and I had developed our little routine pointing out wher the hospital gowns were (in an obscure corner) and that the baskets were for personal belongings and you need to keep these with you and hopefully we managed to put people at more ease with a little eye contact, smiles etc....

Anyway to get to the point (eventually!), all of this cost us nothing and we got back so much more than we gave - humour, smiles, thank you's, helped us pass the time waiting with quite a bit of laughter and even a wink from the most gorgeous man ever - ...he winked at ME, not my Uncle!! ;)

I think what i'm trying to say Jenni is you ARE special and I wish your friends had listened more to you because you deserve to be listened to - This is exacly what you do to others and how you have made me and others feel so welcome and supported on this forum.
I'm guessing your friends felt a bit helpless what to say when all they really needed to do was simple - just listen and chat with you - they would have felt good too and I think some of them are likely to be feeling they should have done that a bit more...
Please dont feel too down, it's them who should feel sad, not you! xxxxx
Hope u feel ok today lots of love Lizzie xxxxx

So sorry this made you so sad Jenni. I wish we could all get together for a Friday night out - what a relief it would be for us all. I know when I go out, I rarely tell people what's going on in my life unless I'm just having a night on my own with my best friend. You are not needy people Jenni - you are all exceptionally unique people who are making the most of your lives despite extreme difficulties and health issues. I could listen to you for hours the amount of stuff you are involved in and have going on at any one time. I hope you are feeling better today.

Julie x

Jenni, how sad for you, I'm sure they didnt mean to make you sad, its just sometimes difficult to know what to say to someone who has a chronic illness. With regard to your training, I dont quite get what was the problem there, surely thats an interesting conversation for anyone?
We are all interested Jenni, we think you and your family are amazing, and not needy at all!! we need you though!!! sending lots of ((((((((hugs))))))))

Oh, Jenni, how sad this is, and what a loss for them if they lose even a little part of your friendship. As everyone here has already said, you are very special in so many ways and I'm sure there isn't one person on this forum who doesn't think you're the bees-knees. You're always there to listen to the rest of us and to lift our spirits with your seemingly unending sense of humour - and how you manage to retain that with all you go through I don't know.
I hope you're feeling a little brighter now.

Anthea xx

Hi Jenni

Just to say I think you are fab I do understand where you are coming from but please don't feel down.

Lyn x

Hi Jenni,
Awww im sorry ur friends made u feel that way,i think people find it hard to understand issues arround health problems im sure they will in time! dont let it get u down keep smiling take care love zakia xxxx

Thats lovely jenni the old friends that have appeared,
and in areas you familar with good news!

yes to right why not want lead normal life more we still youngsters why shouldnt we.
to be listened to is like good emdicine with no side effects to the soul tastes sweet like honey.

take care melly